Rationale
and Purpose
The main premise of disability studies is that persons with disability have been historically excluded from
society and treated as lesser (Linton 518). However, disability remains poorly
understood, especially due to being framed as solely a visibly perceivable
phenomenon. It is also often left out of social justice movements, including
feminism (Garland-Thompson 360-361). This can often lead to the questioning of
one’s identity as a person who experiences disability. As a result, persons
with disabilities, especially hidden ones, are encouraged to hide their
conditions (Samuels 319). Because of this act of concealment, the true
diversity of disability remains poorly understood – though disability is
typically viewed as physical impairment, it can include chronic pain (Wendell
162-163) and varying forms of mental disability such as depression and anxiety
(Price 340). Disability also exists at the crossroads of age, race, sexuality,
class, and other social markers (Bell 407); therefore, disability must be
considered in context of social construction (Shakespeare 198). Though
disability framework may seem purely theoretical, it carries concrete and often
devastating effects for persons with disabilities. Throughout American History,
especially in American immigration policy during the 1900s, disability has
often been invoked to exclude undesirable persons (Bayton 18) – from this
history of stigma, disability is made into an inferior form of life
(Colemna-Brown 149-150). This history imposes oppression upon the broad class
of individuals who fit under disability (Shakespeare 198).
As a person with a disability, I came to
Disability Studies to better understand my condition and to understand the
concrete effect of disability upon lives. In my own experience, the effects of
being judged as disabled are especially keenly felt by children – who typically
exist at the bottom of a power hierarchy. Therefore, one must reckon with the
educational contexts faced by many persons with disabilities. An explicit
relationship between the stigma of disability and worsened educational outcomes
is drawn in the example of a girl named Cassie (Ervelles and Minear 388).
Marked by severe rashes across her body as an adolescent, she is viewed with
great suspicion by her fellow classmates. When the author interviewed Cassie
and her mother, “her turbulent and tragic educational history was slowly
revealed” (Ervelles and Minear 388-389). One especially harsh circumstance she
faced was at Sally’s Corner, a “haven” (Ervelles and Minear 389) for kids with
severe emotional and behavioral problems; there, Cassie was locked in a
make-shift jail cell as punishment. As a student, Cassie was labeled as having
cognitive defects, especially surrounding learning, which was used to justify
her violent social exclusion. Though one may argue that Cassie faced excessive
punishment, her experiences of social exclusion are not uncommon, especially
among persons with visible disabilities (such as rashes). Instead of
integrating her into society, special education served to aggressively cast her
out of the normative realm of school and into disability-driven segregation.
Per a disability studies approach, education should integrate students with
disabilities back into school by providing support, rather than separating
them; under this view, Cassie would have fared better had the educational
system not failed her. However, her peers and teachers both participated in her
disability-driven segregation, fitting into society’s negative views of persons
with disabilities. Because of circumstances like Cassie’s, outreach on
disability and the power structures that define it are essential to understand.
Not simply to improve education, but to offer enhanced self-worth to persons
with disability. Because much of disability is invisible, this makes outreach
efforts even more critical.
According to scholars who examine
the pedagogy of Disney animation, attitudes about social identities, including
disability, are demonstrated through pop culture; in particular, Disney teaches
children “specific roles, values, and ideals” (Giroux 91). Disney’s products
hold teaching authority in the eyes of many parents due to the company’s
meticulously clean image (Giroux 92). Children viewing Disney films often gain
a subconscious disapproval of people who are different, which becomes
incorporated into their worldviews (Giroux 98). Though Disney films are a focus
in this body of writing, the same approach can be applied to other works that
exist within pop culture, including cultural output from other areas. Broadly
speaking, animation overtly reconstructs assumptions about social identity and
ability/disability, making it an especially useful teaching tool. Animated
works should therefore be appropriately analyzed for younger viewers so that
they can understand the potentially insidious subliminal messaging at play
(Giroux 125-132). Younger viewers tend to especially struggle with ideas of
ability and ableism because disability is often hidden away from public
consciousness, including vast swathes of mainstream media. When depicted,
persons with (visible) disabilities (PWD) are often depicted as grotesque and
frightening (Quasimoto in The Hunchback
of Notre Dame), written off as old and ailing after a long life of service
(Mulan’s father in Mulan), or treated
as a short-lived spectacle that draws in awe but is ultimately overlooked
(Ariel in The Little Mermaid). A child
whose only experience with PWDs comes from these movies may misunderstand and
look down upon or fear people who are differently abled. This also suppresses the
self-worth of children with disabilities.
The purpose of this learning guide is to
teach children ages 5-10 about how persons with disabilities are excluded –
this practice ultimately is quite harmful to everyone because it teaches that
only certain forms of life are acceptable. As a result, many persons will feel
pressured to only live per societal expectations. As highlighted by the Cassie
example, children with disabilities of this young age can often be quite
vulnerable. However, subliminal messaging from mainstream media tends to take
root at a young age as well. In popular depiction, PWDs are often portrayed as
people with bad luck or as people simply trapped by their circumstances and
needing society’s help (Norden 164). In
my own experience as a child, I struggled to appreciate that with my condition
I could live in my own unique way; for that reason, I want others to not take
disability as intrinsically negative, even if it can be difficult. Through this
guide, children can learn to affirm the diversity of life that is cast away as
“disabled.”
Age-appropriate materials teaching ability
and ableism are often scarce, making learning materials on disability necessary.
Such materials can be adapted from more academically rigorous sources such as Diversity in Disney Films and The Problem Body to help children
comprehend disability. Through such materials, children should learn how to
critically analyze these portrayals and to better understand disability in
their day-to-day life. However, because my experiences are centered around
physical disability, this guide will not adequately address mental disability.
Additionally, many materials are condition-specific while this guide seeks to
be general. Therefore, age-appropriate materials tackling specifically mental
disability should also be created in future efforts for pedagogy centered
around disability.
Parents and teachers play essential roles
in the lives of their children and students. Therefore, though they may not be
experts in disability studies, they are well positioned to offer support on
subjects surrounding disability. Simultaneously, parents and teachers also
carry ableism from society, meaning that learning about disability offers them
benefit as well.
While
conferring authority, the roles of parent and teacher are complicated by
societal perceptions of disability. Upon learning about their child’s
diagnosis, parents often react with dismay and perhaps even anger (“Learning To
Live with Neuromuscular Disease”). However, many parents typically learn to
accept their child’s condition. Reaching out and speaking to one’s child about
the subject allows for acceptance of the disability and hope for a brighter
future. When a child has a disability, he or she desperately wants acceptance
from a society that tends to be suspicious of people who fall out of the norm.
Accepting disability openly is important, especially when many disorders have a
potential for early death. Teachers play an important role in the life of a
student with a disability, especially considering the difficulty many students
with disabilities face (“A Teacher’s Guide to Neuromuscular Disease”).
Educators can help these students cope with their conditions and provide
life-affirming support that overcomes the systematic oppression they may face.
Though the roles of parent and teacher may seem separated, they both have the
similar purpose of helping children with disabilities accept themselves instead
of giving into negative messages from mainstream media. These children will
likely face ridicule or exclusion from their peers, which makes this effort
even more important. Therefore, the below proposed activities represent an
essential role in education.
Learning
Guide Activities
Children need more concrete examples and, given the prevalence of animated films in children’s media, showing them particular scenes from animated films will help them comprehend issues surrounding ability better. The rest of this learning guide will focus on helping children understand disability; instructors are encouraged to use this guide in a manner that best suits the needs of their particular situation. Showing scenes from Mulan and A Silent Voice will facilitate their grappling with themes of ability. The learning activities described in this guide were based off those activities presented in Teaching Tolerance’s material on disability (“Disability Awareness: We’re In It Together”).
Children need more concrete examples and, given the prevalence of animated films in children’s media, showing them particular scenes from animated films will help them comprehend issues surrounding ability better. The rest of this learning guide will focus on helping children understand disability; instructors are encouraged to use this guide in a manner that best suits the needs of their particular situation. Showing scenes from Mulan and A Silent Voice will facilitate their grappling with themes of ability. The learning activities described in this guide were based off those activities presented in Teaching Tolerance’s material on disability (“Disability Awareness: We’re In It Together”).
The teacher should explain that
disability is struggling to do something important to being alive that others
would not struggle with, like walking or breathing. This definition should be
supplemented by explaining that disability constitutes a wide range of lived
experiences and should not be seen as restricted to, for example, people who make
use of electric wheelchairs. Starting with a readily visible and normative
image of disability would help these children better understand this concept.
The instructor should share the scene from Disney’s film Mulan where the father of main character Mulan, an elderly man, is
pressured to join the imperial army; because of this, he hands his wife his
cane and walks proudly, albeit with a pronounced limp, to stand before the
commander. Though the power over Mulan’s father is superficially martial, it
can also be seen as the influence of societal perceptions. Despite being seen
as a respected member of society, judging from how he is treated by fellow
villagers, he is coerced to relinquish his disability, symbolized by his cane.
The teacher should point out that the film both shows a common physical
impairment, limited mobility, and the power of society to force individuals to
fit normed perceptions of ability. Disability, as suggested by the film, exists
in contrast to these normed expectations.
Following
this scene and a quick breakdown of the presented themes, the teacher should
initiate the “What falls out of the norm?” activity. In this activity, students
will take turns wheeling themselves up a ramp in the school or using a
makeshift ramp if there are no ramps. Wheelchairs can be loaned by a service
provider or by families that have physically handicapped children (with explicit
permission). Each student should get a chance to participate. The purpose of
this activity is to help children understand that the norm does not encapsulate
all experiences so that they can better relate to people unlike themselves.
Specifically, the concrete nature of the exercise will facilitate the
children’s understanding of disability, though the experience is more central
to physical disability. Children may struggle with going from physical
disability to mental disability. The educator should explain that, though the
children learned about the experiences of wheelchairs, many forms of disability
exist. Mulan’s father is one simple example. Though Mulan’s father uses a cane
not a wheelchair, this particular experience of mobility limitation should be
easy for children to understand. In particular, the instructor can illuminate
how he struggles to walk without his cane, which is an experience many persons
with disabilities are familiar with. An instructor could mention their
experiences with mobility limitation. For example, I have made use of a cane to
get around – for a period of time, that cane played an essential role in my
life by helping me ambulate and remain in school. At the same time, the
instructor should also point out how the father’s condition is simultaneously
seen in context of his age; after all, his cane is never commented upon.
Though, mobility limitation is
important to understanding disability, many persons with disabilities have
rather unique challenges, especially those that can directly impede one’s
education. To better understand the variety of physical disabilities, the
students should see an example that ties to sensory function, such as hearing
or sight. For this reason, the 2016 film A
Silent Voice, which depicts a deaf girl named Shouko Nishimiya, is an
excellent example for capturing the complexity of disability. As a deaf person,
she is compelled to communicate in writing, rather than being exposed to
Japanese Sign Language (referred to as Shuwa). The instructor should display
the scene where Nishimiya is introduced; smiling awkwardly, she holds up a notebook
saying that she is deaf. As part of this scene, Nishimiya is shown to face
extreme bullying – one keen example is her hearing aids being yanked out,
causing her ears to bleed.
Children will need help to work through
these examples. The instructor can point
out that even if Nishimiya speaks differently she still is looking to make
friends. One appropriate question could be asking the students how they could
welcome someone like her. Another important area of instruction is about how
persons with disability often rely on tools, including more expensive medical devices,
such as Nishimiya’s hearing aids. In light of social barriers, especially in
terms of Nishimiya’s difficulty with normative communication, such tools are
quite valuable. This provides another opportunity for empathizing with how
persons might use hearing aids or other tools like wheelchairs. The emphasis
should be on how these devices exist as a familiar aspect of the lives of many
persons with disabilities. A brainstorming activity could help the students
understand how many people use such devices.
Afterwards, the instructor should share
the scene where the principal announces that Nishimiya has lost eight pairs of
hearing aids. This represents an extensive monetary and emotional cost for her
family emotionally. The framing of this scene draws sympathy for Nishimiya because
of the violence inherent in the tearing off of her hearing aids. Here is the
lesson that having a visible disability, including the use of visible devices,
can often lead to bullying, with devastating and costly consequences.
Because deafness may be more difficult for
students to imagine, the instructor may need to offer additional explanation.
One simple exercise to understand Nishimiya’s situation could be to imagine not
being able to hear; then the students could be asked to brainstorm how their
social interactions would change. As a student with a disability, I had the
opportunity to hide my mobility limitation whereas Nishimiya would not be able
to hide her deafness easily; as a result, this film could also provide a
springboard to discuss invisible disabilities. One major challenge persons with
disabilities face is not being believed about their condition. In this case,
Nishimiya’s hearing aids are torn off because her classmates do not believe
that she actually needs them. This questioning greatly harms one’s self-worth
by sowing doubt in their identity. Therefore, the instructor could use this
opportunity to encourage empathy with persons with disabilities, rather than
seeing them as requiring special attention. As this case is more complex than
the Mulan scene, the instructor may need to pick just one of the themes
highlighted here. But the primary emphasis must be that persons with disabilities
lead full lives, with or without medical devices, and want to feel included
within society.
Depending on the goals of the lesson, an
alternative activity could focus on disability through an art exercise (Tavin
and Anderson 2003). This activity is
similarly focused on the pedagogy underlying many depictions of disability.
Simply put, children could be asked to draw someone who struggles with one
aspect of life, such as walking, and ask them to imagine how they live and play
and learn. Alternatively, the students could be asked to develop a list of
possible challenges people with disability may have – and to demonstrate this
understanding through a drawing or another art project. This strategy could be
especially be valuable if showing scenes from films is not feasible in the
classroom setup; it may also be more accessible than other activities.
Children will likely still have
questions that need answering. At this point in the exercise the educator
should field questions and give honest and straightforward answers. The themes
and lessons learned should be summarized by the instructor to help bring the
entire lesson together. In particular, the instructor should reiterate that
disability comes in many forms, whether physical or mental, and conclude by
dissecting the ability of media to change the perceptions of its viewers.
Assessing Effectiveness
Assessing Effectiveness
As a result of participating in this
lesson, children should be able to dissect messages based on what they have
previously seen. This step would take place if time remained after the lesson
or could be performed in a separate lesson. Their comprehension of the material
can be tested by simply asking them to answer the following questions: “What is
the importance of the other characters in Mulan
looking and acting so unlike her father during the scene shown during the
lesson? What does it mean to you?” The goal is not a correct answer but rather
a thoughtful answer that tries to look at the material from multiple
perspectives. The children should comment on how harmful norms can become when
they are continuously applied. They may, for example, talk about how though
Mulan’s father clearly acts differently from the able-bodied norm, he is still
someone worthy of respect. Most importantly, the comment should reflect an
understanding that individuals can be treated in affirming ways with respect to
ability. The instructor can also ask
about A Silent Voice examples – for
example, “How do you see people who have trouble talking like you? Or people
who cannot speak? Can you still see them as a friend?” In this exercise,
overlap with previously covered material is emphasized – because the children
are still grappling with the meaning of disability, they will likely need to
hear some key points again. After this lesson, instructors and parents should
be challenged to continue working with children to better understand
disability.
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